Survivorship Care Package

I had my survivorship appointment with the oncologist PA last week. We went through everything I need to know as a survivor. I like the word warrior better but I suppose that applies to someone who is fighting the disease, not after. The PA examined all the areas she needed to. I was glad because I am not good at checking for lumps in the breasts.

We talked about getting me on the next estrogen suppressing medication. Number 3 with only one more to try. This one is called Exemestane. The PA told me to wait another week or two before starting this one. She said most patients have hot flashes or joint pain with the medications. I seem to be stretching their side effect limits.

We went through all the doctors I saw through the lumpectomy, chemotherapy and radiation treatments. A print out was given with all the information of the size, type and classification of my tumor. We went through all the residual side effects. Fatigue, difficulty sleeping is at the top of the list. I do get tired easily but it is getting better. I still have neuropathy in the toes. This may be a condition I might have for the rest of my life.

Osteoporosis is also listed as a side effect. Funny that. I had osteoporosis since 2010. I had been taking Fosamax then switched to the twice yearly injections. I was sent for a bone scan prior to starting on the estrogen suppressing medications. My bones are now healthy and strong. Every doctor is totally surprised that has happened. They cannot explain how it happened. I was taking a good calcium/magnesium supplement. I was riding my horse five days per week. I consider it a blessing from God.

Anxiety and stress are another residual effect. Great. I am going through a lot of stresses right now. Just pile it on higher and deeper. I wonder if I can get a lobotomy. I am having arguments with Canada Revenue (Canadian IRS) who have been holding onto a sizable refund check to me for more than one year. I am being sued by my ex husband for the illegal activities he did during our marriage. Thankfully I have an excellent lawyer and I have so much documentation that I am certain we thinned out a few forests. I am also going through a huge personal stress. Please Jesus, help me with this one.

Another side effect is weight gain from the chemotherapy. Apparently every breast cancer patient gains weight. Even though the furthest thing from your mind while you are undergoing chemo is food. I had no appetite. Unfortunately, the things I did eat and could keep down were carbs. I ate some vegetables and fruit but so many things were just too hard on my stomach. I can no longer eat anything spicy. You do not want to be too close to me should I eat something spicy, or at least sit down wind.

I did gain weight. More than 25 pounds. After the radiation treatments and when I started to feel a little normal again, I was tired of running past mirrors. Or just looking into them and saying, “Oh, yech!” I finally got tired of this and was just angry enough with myself to look for a weight loss program.

I am the type of person that needs results now. Losing 2 pounds per week after starving myself to death was not an option. So with my determination in hand, I went to Carolina Health Center. I think they call themselves Align now. This diet is very similar to the HCG diet. I lost over 20 pounds in one month. That’s the way to do it. I want to lose another 7 pounds and then I will be at my goal weight. I have slowed down the weight loss now for the last 10 pounds and that is okay by me. I started having chocolate cravings and I knew if I waited until the end, I would probably gorge myself with chocolate. So I bought a couple cartons of delicious Ben & Jerry’s chocolate flavored ice creams. I was very careful in how much I ate. Still losing weight but at least enjoying chocolate in moderation. I also started adding nuts into the diet. Just a handful at a time but it is enough to curb the munchies.

The recipes with this diet are superb. I have tried almost all of the recipes and have been so happy with the flavors. All fats, carbs and dairy are excluded from my diet. Only hormone free beef, chicken, turkey and certain fish, certain vegetables and certain fruits. I have switched all my food to natural. Not organic but natural. All cosmetics are natural without oil. I am gradually changing all my cleaning products to natural.

I was told by the PA oncologist to keep my BMI to 25 or 26. This is something I can do. If this is going to keep me cancer free, I will do it. Gizmo, my horse, is so much happier that I am 20 plus pounds lighter. Some time soon, I won’t get winded when I am playing with my grandchildren. I am the one who cuts the lawn at our house. I will enjoy being able to push that lawnmower and not have to take breaks. Our yard is not that big.

Now I am a survivor. At some point, I want to get a pink ribbon tattoo with a pink butterfly and the word survivor. My husband is worried that I am going to get all tatted up. I won’t. I have the butterfly breaking free of the ball and chain on my back close to my shoulder. No one can see it really. The pink ribbon tattoo, I do want more visible and I think the calf will be a good place. Then that will be it for the tattoos. Maybe. Perhaps. I don’t know. Probably.

 

 

Anastrazole – My last Cancer Steps

I met with my oncologist who has now put me on Anastrazole which is an estrogen suppressing medication. I am supposed to take one pill a day for five years.

There are a number of side effects with this drug. So far, after two weeks of taking this drug, I am feeling fine. However, one of the side effects can be bone density loss. For someone who has osteoporosis, this is a concern for both my oncologist and myself. I could not remember the last time I have had a bone density scan done so my oncologist scheduled me for a scan. Currently, I am trying to set up an injection for Prolia for the osteoporosis.

Yesterday, I went for the scan. This was the easiest test I have had to go through. The technician scanned my back and then the pelvis area and then my left arm. She said that I have good, strong bones. Then she showed me where the points line up, that determines if I have osteopenia or osteoporosis. They have a green area for good, strong bones, a yellow area for osteopenia and a red area for osteoporosis.

My back, pelvis and arm bones all show up in the green area. I almost started to cry. The technician said the radiologist doctor had to examine the scans but I do not have osteopenia or osteoporosis. I tried to give the technician a hug and then bounced out of the examining room with the biggest smile on my face.

I felt free. Whatever I have been doing lately, changing my diet, exercising, the vitamins I am taking and  even through chemotherapy and radiation treatments or maybe just that I am so much in love with my new husband, has made my bones strong and healthy again. One more step towards being healthy.

Thank you God. Thank you Jesus. If you let yourself, Jesus will never let you walk alone, through whatever you are going through. The problem is, you have to have faith and trust and love. I can feel Jesus is just as happy with my news from yesterday.